On June 18th at 11:14pm my beautiful son was born! I was induced that afternoon, I wanted a natural delivery but the pitocin made my contractions horrible! I felt like they were never ending and I was dilating very slowly. I decided to get an epidural, then I was so relaxed that 2 hours later I was dilated to 8!
As for baby Fred, 2 days after delivery I got the news that Hydrocephalus was pretty much the wrong diagnosis. His new diagnosis is Septo-optic Dysplasia Plus. My little Fred is blind!
Septo-optic Dysplasia basically means: His brain is missing the middle part where it separates the two halves and also the signals cannot be sent from his eyes to his brain and they are saying plus because he has some other underdevelopment or mis-development I could say. His brain where there should be certain formation or patterning is "disorganized" ,messed up. So we don't know how connections and signals will be sent or how he will develop.
His diagnosis seems grim and I've been struggling everyday but everyday I wake up with a new attitude and feeling like; Okay, a new day and a new start! Let's do this. All that matters right now is that he is eating, although a little bit on the rocks, sleeping and pooping and thats all a baby needs to be doing. We will deal with anything else as it comes.
Pictures below;
Fred after birth
Fred 1 day old after his head rounded off, lol.
& the other two are him in his isolet chillin. He was really jaundice and sleepy so I hope his feeding gets better when that passes.
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